The Morgan Leary Vaughan Fund for Necrotizing Enterocolitis (NEC) is an all-volunteer, public charity dedicated to promoting public awareness about NEC and the potentially devastating effects it can have on preemies and their families, and to advancing research to prevent, diagnose, treat, and ultimately, cure NEC.
The Morgan Leary Vaughan Fund
On October 29, 2010, our twin sons were born at 28 weeks, one day gestation — nearly three months early — each weighing less than 2.5 pounds.
At four days old, Morgan was diagnosed with NEC (pronounced “neck”) and underwent emergency surgery at Yale-New Haven Children’s Hospital to resect (remove) nearly eight inches of his small intestine. For his age and size, that was equal to approximately 20% of his small intestine. At the time of his surgery, we had never even heard of NEC nor did we know anything about its startling statistics.
Morgan would spend 105 days in Yale’s Newborn Special Care Unit recovering from his initial surgery, and then a second surgery in which his small intestine was reconnected.
Immediately after Morgan’s diagnosis, we began to research NEC and its causes and outcomes. We had questions not only about his recovery, but also about what his future would hold after he came home.
We quickly learned that, for as common as this dangerous and often fatal disease is in premature babies, there is very little information about NEC available online. And there is no national organization dedicated to NEC.
We also learned that the March of Dimes does not allow donations to be earmarked for research of a specific disease.
So, we decided to create The Morgan Leary Vaughan Fund, Inc. — a public charity dedicated to Necrotizing Enterocolitis (NEC). Named after Morgan, it celebrates his survival, courage and strength.
We noticed that most of the time organizations are formed due to loss of a family member. The Morgan Leary Vaughan Fund, Inc. was founded because we know how lucky we are that Morgan not only survived but has also thrived since his bout with NEC. This is our way of paying it forward.
The mission of Morgan Leary Vaughan Fund, Inc. is as simple as it is complex: finding a cure for NEC.
The Morgan Leary Vaughan Fund, Inc.’s strategies are straightforward:
- To create awareness about NEC and the potentially devastating effects it can have on newborns and their families. No one that we’ve spoken to outside of the NICU has ever heard of this disease.
- To raise money through donations, with which we can directly finance NEC research and its diagnosis, treatment, and ultimately, its cure.
Services we provide
Morgan’s Fund through its support of research, and with your help, hopes to change the lives of thousands of very low birth weight babies like Morgan, who have the greatest risk for developing NEC.
Resources regarding necrotizing enterocolitis (NEC) can be found on The Morgan Leary Vaughan Fund website.
The Morgan Leary Vaughan Fund is an active member in the prematurity community. Information about how to attend upcoming events and fundraisers can be easily found by visiting their website.
Frequently Asked Questions
In this section, you will find questions that are frequently asked about The Morgan Leary Vaughan Fund. If you have a question about The Morgan Leary Vaughan Fund, their mission, or want to know more, please feel free to contact Preemie Parent Alliance and we will make sure your question is answered promptly.
What kind of families do you work with?
The Morgan Leary Vaughan Fund works with the most fragile of families – those who have experienced a premature birth.
What year were you established?
The Morgan Leary Vaughan Fund was established in 2012
What is your organization classification?
The Morgan Leary Vaughan Fund is a non-profit organization
What is the geographical reach of your organization?
The Morgan Leary Vaughan Fund supports families across the nation.
Drop us a line anytime, and we will respond to you as soon as possible.