Our son, Grayson Edward Kapferer was born at 12:05 am on the 7th of February, 2012 at Beth Israel Deaconess Medical Center in Boston, Massachusetts. Grayson was premature by 6 weeks, being born at the 34-week mark exactly. He was a growth restricted baby weighing in at only 2 pounds 14 ounces. But even though he was small, he was perfect in every way. He excelled in his progress as he developed in his first week of life. He was breathing completely on his own, was feeding from a bottle, was gaining weight and even got to the point of regulating his own body temperature. He was a fighter.
Toward the end of his 6th day here, he began to show some signs of distress, eventually presenting with a large bruise on both sides of his abdomen. NEC (Necrotizing Enterocolitis) was the diagnosis. NEC attacks the walls of the intestines, eventually breaking through to cause sepsis. Grayson’s blood had also stopped clotting causing him to need transfusions. He was given antibiotics and blood transfusions to no avail. He was transferred to Children’s Hospital Boston where they did everything they could to help. But, in the end, we made the decision to let him pass peacefully. The time was 2:19 pm on the 14th of February, 2012 (Valentine’s Day). We had him for 7 days and would not give that up for the world. There are currently no decisive methods for early detection of this condition.There is no definitive cure, means of prevention or vaccination against this condition. Many groups and doctors are currently researching and doing all they can to combat this horrible condition. We are here to do everything we can to help them. No parent should ever have to lose their child. Especially not in a way that somehow could be prevented. We want to beat this horrible condition. Please join Team Grayson and all its allies in the fight to cure this condition and end NEC for good.
We are dedicated to ending Necrotizing Enterocolitis (NEC) through increasing awareness, funding research and increasing education.
Services we provide
Team Grayson helps fragile families find the emotional support they need to thrive.
Resources regarding necrotizing enterocolitis and support can be found on the Team Grayson website.
Team Grayson is an active member of the prematurity community. Information about how to attend upcoming events and fundraisers can be easily found by visiting their website.
Frequently Asked Questions
In this section, you will find questions that are frequently asked about Team Grayson. If you have a question about Team Grayson, their mission, or want to know more, please feel free to contact Preemie Parent Alliance and we will make sure your question is answered promptly.
Wha kind of families do you work with?
Team Grayson works with the most fragile of families – those who have experienced a premature birth.
What year were you established?
Team Grayson was started in 2012 so that no family has to endure their NICU journey alone.
What is your organization classification?
We are a non-profit organization
What is the geographical reach of your organization?
Team Grayson supports families in our local community as well as families Internationally.
Drop us a line anytime, and we will respond to you as soon as possible.