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Bioethics & Patient Advocacy: Making Meaningful & Responsible Contributions

9:30 – 10:45 am, Auditorium

For some parents of preemies, the desire to help others experiencing the same situation can be impossible to ignore. For you, it launched your journey as a NICU Parent Leader. As a leader, you are tasked with speaking for and representing the best interests and needs of this unique parent population. While we all have the very best intentions at heart, we have to ask if our personal experiences are representative enough to speak for an entire community. What ethical responsibilities do we have as leaders and advocates? How do we make meaningful contributions to research teams and advisory councils? This enlightening panel discussion will delve into a brief history of bioethics and how you, as a patient advocate, can make a positive impact in this discipline.