NEC Society

The NEC Society is dedicated to protecting premature and fragile infants from necrotizing enterocolitis. We strive to bring together NEC families, researchers and clinicians to reduce the incidence of NEC. We are an activist-based organization, meaning we are committed to effecting change within NICUs that best protect babies and families from NEC. 

NEC Society

Dallas, Texas


NEC is a leading cause of infant death and claims the life of about 500 babies every year in the United States. In addition, thousands more infants are impacted by NEC that results in extensive surgeries, lengthy hospitalizations and life-long complications. Despite research and medical advancements, the NEC mortality rate has not improved in over thirty years.

The NEC Society believes the status quo is unacceptable. Research has shown that there are ways to help prevent this devastating disease, but lack of prioritization, funding and awareness have hindered meaningful progress. The NEC Society seeks to close the gap between best practices and what is actually happening in neonatal intensive care units (NICUs) across the country. The NEC Society wants to see health institutions, policymakers and the public prioritize this common, costly, deadly neonatal disease.

Necrotizing enterocolitis (NEC) is a devastating intestinal disease that affects thousands of premature infants every year in the United States. Through education, outreach, research, and advocacy, we are committed to reducing the incidence of necrotizing enterocolitis.

Up to date information can be found on the NEC Society website

Services we provide


The NEC Society encourages families impacted by NEC to explore the resources of NICU families listed on their website



This is what we do:

Raise awareness

  • On the factors that increase the risks of NEC:
    • Formula
    • Antibiotics and other pharmaceuticals
    • Quick advancement of feeds
  • On the factors the reduces the risks of NEC:
    • Human milk
    • Probiotics


  • Partner with scientists whose research focuses on necrotizing enterocolitis in premature infants

  • Develop research priorities needed to prevent, reduce, and treat necrotizing enterocolitis in premature infants




  • For policies that best protect premature infants from necrotizing enterocolitis, which includes the recommendation of an exclusive human milk diet for premature infants.

  • For hospitals to implement practices that best protect premature infants from necrotizing enterocolitis, which includes ensuring an exclusive human milk diet for premature infants.

Frequently Asked Questions


In this section, you will find questions that are frequently asked about NEC Society. If you have a question about NEC Society, their mission, or want to know more, please feel free to contact Preemie Parent Alliance and we will make sure your question is answered promptly.

What kind of families do you work with?

NEC Society seeks to protect premature infants from necrotizing enterocolitis.

What year were you established?

The NEC Society was founded in 2014

What is your organization classification?

The NEC Society is a non-profit, tax-exempt, 501c3 organization

What is the geographical reach of your organization?

NEC Society supports families internationally.

Contact Us

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