Member Directory

Connected Forever

Connected Forever

Connected Forever supports families who have experienced premature birth or infant loss by providing resources, education, and emotional support.

Courageous Steps

Courageous Steps

Courageous Steps is engaged in the process of growing servant-leaders who will lead mission-driven organizations related to prematurity or special needs.

Families Blossoming

Families Blossoming

Families Blossoming provides proven and forward-moving coaching-based emotional support to preemie and special needs parents, post-NICU, in a number of specific areas, so they are empowered and able to reach a point of clarity, direction and optimism for their lives in the midst of their unique journey. 

Glo Preemies

Glo Preemies

Glo Preemies supports families who have experienced premature birth or infant loss by providing resources, education, and emotional support.

Go Preemies!

Go Preemies!

Being born a preemie isn’t easy, but we’ve got some of the most famous figures in history to look up to. Go Preemies! tells the inspirational stories of the most accomplished leaders, scientists, athletes and artists, who were all born prematurely, like you!

Graham's Foundation

Graham's Foundation

Graham’s Foundation empowers parents of premature babies through support, advocacy and research to improve outcomes for their preemies and themselves.

Hand to Hold

Hand to Hold

Hand to Hold provides ongoing support, education and navigation resources to parents and serves to fill the service gap that currently exists for families who have had a child in the NICU or who experienced a loss.

Holding Tiny Hands

Holding Tiny Hands

Providing encouragement, strength, & hope to families with infants in newborn intensive care.

Instituto Pequenos Grandes Guerreiros

Instituto Pequenos Grandes Guerreiros

Provides psychological assistance to families of babies affected by Necrotizing Enterocolitis, collects data on the disease in Brazil, and fosters research.

 It's a Preemie Thing

It's a Preemie Thing

It’s a Preemie Thing adds a twist of humor and love in the form of onesies and t-shirts for the whole family of preemies. We also provide a great forum for information and a place to ask questions of other preemie parents on our Facebook page.

Jennifer Degl

Jennifer Degl

Founder

Speaking for Moms & Babies, Inc. aims to spread awareness about maternal and neonatal health issues through advocacy and education. Jennifer is also the Author of From Hope to Joy: A Memoir of a Mother’s Determination and Her Micro Preemie’s Struggle to Beat the Odds.

 Kasey Mathews

Kasey Mathews

Mission – To raise awareness of the tremendous emotional impact premature birth has on preemie parents. Educate others on available alternative therapies. Give voice and speak truths many find themselves unable to say out loud. Offer hope and inspiration.

Keep 'Em Cookin'

Keep 'Em Cookin'

Keep ‘Em Cookin’ is an educational organization that gives pregnant women the most significant opportunity to prevent preterm birth by providing them with current information on high-risk pregnancy and by connecting them with an online community of other women facing a difficult pregnancy.

Lily's Hope

Lily's Hope

The Lily’s Hope Foundation supports babies, children, and their families with unexpected and urgent needs due to premature birth. We support our NICU families by providing them with essential items since they have been unable to prepare for their child’s early arrival.

Little Giraffe Foundation

Little Giraffe Foundation

Little Giraffe Foundation is dedicated to funding neonatal research aimed at improving quality of life, as well as supporting parents and patients of the NICU through our gift giving program of books and comfort items. 

Me Two Books

Me Two Books

Me Two Books creates children’s books that celebrate what makes each child wonderfully unique.  Our books are characterized by rhythmic rhyming text and colorful charming illustrations.

National Perinatal Association

National Perinatal Association

The National Perinatal Association (NPA) gives voice to the needs of parents, babies and families and all those interested in their health and wellbeing.

NEC Society

NEC Society

The NEC Society is dedicated to protecting premature and fragile infants from necrotizing enterocolitis. We strive to bring together NEC families, researchers and clinicians to reduce the incidence of NEC.

NICU Helping Hands

NICU Helping Hands

NICU Helping Hands is an organization that develops hospital- and community-based programs that provide education and support for families with babies in the neonatal intensive care unit (NICU), during their transition from hospital to home and in the event of an infant loss.
Nurtured by Design

Nurtured by Design

Nurtured by Design is the pioneer and global leader in the research, development, and marketing of devices and solutions that apply ergonomics and human factors engineering to support the neurological, physical, physiological, and psychological development of the neonate.
Once Upon A Preemie

Once Upon A Preemie

Once Upon A Preemie supports families who have experienced premature birth or infant loss by providing resources, education, and emotional support.

Pebbles of Hope

Pebbles of Hope

Our mission is to leverage the power of media, technology and community to help babies born prematurely in under-served areas survive and thrive through parent education.

Preemie World

Preemie World

Preemie World was created to help bridge the gap between parent and professional in the NICU, at home and beyond. With books, videos, and other products and tools, the hope is to make everyone’s life just a little bit easier as the “new normal” is created in the life of the preemie and his/her family.

Team Grayson

Team Grayson

Team Grayson supports families who have experienced premature birth or infant loss by providing resources, education, and emotional support.

The Gift of Life

The Gift of Life

The Gift of Life offers hope, encouragement, and support to the parents of premature babies in the neonatal intensive care unit.

The Morgan Leary Vaughan Fund

The Morgan Leary Vaughan Fund

The Morgan Leary Vaughan Fund for Necrotizing Enterocolitis (NEC) is an all-volunteer, public charity dedicated to promoting public awareness about NEC and the potentially devastating effects it can have on preemies and their families, and to advancing research to prevent, diagnose, treat, and ultimately, cure NEC.

 The Tangerine Owl Project

The Tangerine Owl Project

Our mission is to help families who have infants in the Infant Special Care Units (ISCUs) and Neonatal Intensive Care Units (NICUs) of Skokie, Evanston and Chicago’s North Shore area through emotional support, through community resource education, and through service-focused improvements at the ISCUs and NICUs.

The Tiny Miracles Foundation, Inc.

The Tiny Miracles Foundation, Inc.

The Tiny Miracles Foundation, Inc. is a not-for-profit organization dedicated to helping families with premature infants in and around Fairfield County, Connecticut.

Will’s Way Foundation

Will’s Way Foundation

Founded by Scott Bolick and Brittany Lothe after the premature birth of their son, Will, Will’s Way Foundation provides support grants and solutions to improve children’s health in the San Francisco Bay Area.

 Zoe Rose Memorial Foundation

Zoe Rose Memorial Foundation

To empower and inspire hope by providing emotional support, educational resources, and awareness focused events for families in the NICU, transitioning home and those who have lost a baby. 

The Preemie Parent Alliance fills a critical gap in healthcare education and advocacy. By elevating the voice, experience, and expertise of NICU parents and families, PPA member organizations provide a perspective that has been missing historically. Healthcare policy and protocols need to be informed by patient experience. And NICU parents are experts by experience. We aren’t “just parents.” Apart from the NICU experience that unites us, we are educators, advocates, professionals, and caregivers who have meaningful and significant contributions to make to the advancement of neonatal care.
Erika Goyer

Advocate, National Perinatal Association