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International Neonatal Consortium Multi-stakeholder Survey

This is an invitation to participate in a study commissioned by the International Neonatal Consortium (INC) because they believe your experiences can assist in assessing communication practices in neonatal intensive care units (NICUs) regarding research or research practice.

The International Neonatal Consortium (INC), launched in 2015 as a global collaboration, was formed to forge a predictable regulatory path for evaluating the safety and effectiveness of therapies for neonates.

This study consists of three parallel surveys developed for (1) parents, (2) nurses/nurse researchers, and (3) neonatologists/physician researchers. You will be taking the parent perspective.

This study is designed to gain your perspective on five key topic areas including:

  • Role of research in neonatal intensive care units
  • Education & training of neonatal personnel on the role of neonatal research
  • Current communication flow in the NICU
  • Research consent process
  • Research results disclosure

You will be participating in this study by completing an online survey. The results will be analyzed and compiled, with the intent to publish the insights gained to enhance the practice of communication related to neonatal research in the NICU setting.

Your participation in this survey is completely voluntary and no compensation will be provided.

The questionnaire will take approximately 20-30 minutes to complete.

Your responses will remain confidential and anonymous. In order for all of the information to remain confidential, please do not include your name, or others names while answering questions.

If you chose to participate in our study, please answer all questions in the survey to the best of your recollection.

If you have any questions regarding the survey, please contact [email protected]

We thank you for your willingness to participate in this study and help us with this important endeavor.