Holding tiny Hands

Providing encouragement, strength, & hope to families with infants in newborn intensive care.

Holding tiny Hands

Des Moines, Iowa


Holding Tiny Hands is made up of former preemie parents who know what it’s like to have a baby in the NICU where you are forced to redefine your role as a parent. Instead of protecting your unborn baby in the womb, you watch him fight for his life as he is hooked up to machines with countless tubes and wires coming from his tiny, alien-like body. Instead of feeding her, you watch her receive her nutrients through a tube. Instead of clothing him, you know that he is dressed only in a diaper should something happen that would require immediate access to him. Instead of keeping her from harm, you watch the nurse prick her heal for the eighth time that day to retrieve blood for tests. Instead of hearing him cry, you can only see him cry because of the ventilator tube down his throat. Instead of holding her, you provide what little comfort you can with your hands through the holes of the isolate. Only another parent who has walked through this storm can truly understand what it’s like for the parent currently facing these challenges. These are the parents of Holding Tiny Hands, providing encouragement, strength, and hope.

Holding Tiny Hands provides a continuum of support to parents of premature or chronically ill
infants beginning in the NICU, throughout discharge, and beyond.

Services we provide


Tiny Treasures Gift Bags

Tiny Treasures Gift Bags serve as Holding Tiny Hands’ introduction to parents. Bags contain items intended to provide comfort to parents and their little one(s) during their NICU stays. Bags also contain information on community resources available to help them care for their premature or chronically ill infant at home.

Meals for Moms & Dads

Meals for Moms & Dads are monthly meals provided in the hospital which allow parents a break from the stresses of the NICU for a good meal and fellowship with other parents, yet allow them to remain close to their baby.

Helping Hands Project

Helping Hands is a group of volunteers who take care of household chores for the family while their baby is in the hospital. Examples of duties that families have difficulty keeping up with during this time are mowing, shoveling, tending to pets, watering plants, and providing a home-cooked meal. The objective of Helping Hands is to alleviate some of the family’s responsibilities of everyday life so they may focus their energy on their baby.



Volunteers are the backbone of our organization and have made our programs possible. By generously giving their time, energy and heart to our cause, more of the dollars donated to our foundation can be used to directly benefit the families we serve during their NICU stay and beyond.



Educational Outreach

During a time when parents are at their most vulnerable, parents assume their role on the sidelines in the NICU, lost in the myriad of tubes, wires, and alarms, and relying on others to keep their baby alive. Holding Tiny Hands is there to help parents find their way. Through our educational outreach, we provide an outlet for parents to share and learn from experts and one another. Education sessions for current and graduate parents provide a continuum of support that allows them the opportunity to gain the information needed to become the best advocates for their children. Our educational outreach is based on the following guiding principles of Holding Tiny Hands:

  1. All parents play an essential role in the care and development of their premature or chronically ill infant
  2. Parents in this critical environment need a strong support system
  3. Critically ill infants need a strong advocate
  4. All parents can be strong advocates for their child

Frequently Asked Questions


In this section, you will find questions that are frequently asked about Holding tiny Hands. If you have a question about Holding tiny Hands, their mission, or want to know more, please feel free to contact Preemie Parent Alliance and we will make sure your question is answered promptly.

What kind of families do you work with?

Holding tiny Hands works with the most fragile of families – those who have experienced a premature birth.

What year were you established?

Holding tiny Hands was founded in 2010.

What is your organization classification?

Holding tiny Hands is a 501(c)3 nonprofit.

What is the geographical reach of your organization?

Holding tiny Hands supports families in our local community as well as the Des Moines region.

Contact Us

Drop us a line anytime, and we will respond to you as soon as possible.

Collaborative Webinar Series
The Preemie Parent Alliance hosts a quarterly webinar series in partnership with the National Perinatal Association (NPA). Subscribe to receive information about future webinars in our collaborative series.
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