Hand to Hold provides ongoing support, education and navigation resources to parents and serves to fill the service gap that currently exists for families who have had a child in the NICU or who experienced a loss.
Hand to Hold
Hand to Hold’s vision is to enable a network of families to offer support, comfort and understanding to one another, and to provide them with knowledge, information and resources to reduce the impact of a NICU stay and ensure the best outcome for their children and family by:
- Empowering parents to advocate for their children
- Facilitating peer support and encouraging individual, couple and family counseling when needed
- Educating parents about the challenges their babies might face and preparing them to meet those needs
- Sharing support and resources to help comfort families following a terminal diagnosis or loss of a baby
- Working with healthcare professionals, hospital systems and specialists to ensure families thrive during and after a NICU stay
Hand to Hold’s mission is to provide comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs, and those who have experienced a loss due to these or other complications.
Learn more about Hand to Hold’s signature prematurity awareness campaign and annual Preemie Power Photo & Essay Contest.
Join Hand to Hold’s Team Preemie Posse. Run or walk to get fit and raise awareness and support Hand to Hold’s mission to ensure that every parent has the strong support they need when a child is born early or has a hospital stay.
Hand to Hold produces both a print newsletter – that can be distributed through NICUs and medical providers – called “Hand Prints” and a monthly Hand to Hold e-newsletter for parents and professionals. Read more.
Be sure to join our Contact List to stay connected to receive the latest newsletters and updates.
Find out about Hand to Hold’s upcoming events, support groups, awareness and fundraisers.
Services we provide
Hand to Hold’s core service is its peer-to-peer support matching program linking a seasoned parent of a preemie (Helping Hand) with a new parent of a preemie. The birth of a premature infant or a baby with special health care needs is an extremely challenging and life-altering time, and the challenges often continue well after the baby has been discharged from the hospital.
Families need a community. Hand to Hold was created so that every parent who has had an experience with preterm birth, life in the Neonatal Intensive Care Unit, a child born with a special health care need, loss of pregnancy, and/or infant loss will be supported as they navigate the many challenges of caring for themselves and their family.
With the intention of providing a comprehensive network of assistance, information and education, Hand to Hold provides the following programs:
- Preemie Babies 101 – Hand to Hold’s blog written by parents for parents
- Life After NICU – Hand to Hold’s online peer support forum where parents share their joy, questions, and experience.
- Meet the Provider – Your guide to the people and services who can help your family
- Helpful Articles – Everything you want to know about navigating the NICU and the world beyond.
- Our Online Resource Directory – A guide to finding the information, services, and products you need
- Educational Videos – The latest on nutrition, development, and caring for your emotional health
- Sibling Support – Resources and programs for the brothers and sisters of NICU babies
- Social Media Outlets – Like Facebook, Pinterest, and Twitter
- And more.
The following resources are now available to assist parents of preemies, parents of children with special health care needs and those who have experienced a loss. If you would like to add a resource to our list, we welcome your input. Please contact us.
Find out more about how to receive support from Hand to Hold, how to become a Helping Hand peer mentor for other parents and more.
Watch educational videos to learn more about caring for medically-fragile child, your family and yourself.
Access full-text articles on topics for parents who have had a high-risk pregnancy or delivery, a child or children born premature or with special health care needs, or a loss. If you would like to recommend a topic or can share your knowledge, please contact us. Learn more.
Recursos en Español. (Resources in Spanish)
Read in-depth profiles of resources featured in our online, interactive resource directory.
Do a search for a specific provider or nonprofit to help you navigate caring for your child, yourself and your family. Not on the list? Fill out a convenient form to add your organization.
Access interviews from health care providers to give you the background you need when looking for the right specialist and health care providers for your child and family. Learn more.
Your experience is valuable. Sharing what you’ve learned can make a lasting difference to a fellow NICU family. Being a mentor to others can also help you feel connected and empowered! Join our volunteer list to request a volunteer role.
With the touch of a button you can help spread the news that NICU families are no longer alone. With your help, we can instill hope and provide vital resources to empower families to achieve health and stability. Please consider sharing information about Hand to Hold with your friends, family and health care providers. You can connect with us here or on social media sites. Please join the conversation – and join our community of parents and professionals. Do you want to bring services and support to a particular NICU? Find out how to sponsor a NICU Resource Library.
Frequently Asked Questions
In this section, you will find questions that are frequently asked about Hand to Hold. If you have a question about Hand to Hold, their mission, or want to know more, please feel free to contact Preemie Parent Alliance and we will make sure your question is answered promptly.
What kind of families do you work with?
Hand to Hold knows that the premature birth of a baby, a baby born with special health care needs or the loss of a baby affects the lives of all family members. Like parents, siblings need support, encouragement and information. So Hand to Hold has created comprehensive programs and services to support both you and those you love.
What year were you established?
Hand to Hold was founded in 2009.
What is your organization classification?
Hand to Hold is a nonprofit 501(c)3 parent support organization and information and resources provided here do not intend to take the place of the relationship between a patient and personal physician.
What is the geographical reach of your organization?
Hand to Hold supports families throughout the Nation.
Drop us a line anytime, and we will respond to you as soon as possible.