601.345.1772 [email protected]

Schedule

2018 Preemie Parent Summit

NICU Parent Leadership: Expanding the Possibilities

Day 1 – Friday, Sept. 28

All Activities at Hyatt House Hotel
}

9:30 am - 10:00 am

Pre-Conference Registration

}

10:00 am - 2:00 pm

 

Pre-Conference Workshop – Own the Room

Deborah Shames & David Booth

Whether you pitch for business, raise money for your organization, or want to be seen as a thought leader on the global stage, this Eloqui workshop provides the necessary tools. Over four hours, you will learn new skills and find your authentic voice. Deborah and David shape the content of volunteers and make adjustments to ensure success. The specific modules include storytelling, identifying your unique differentiators and how to open any presentation or devise a compelling elevator speech. We will also take requests, and offer tips on overcoming anxiety, movement, and preparation.

  1. Construct and deliver a compelling example or story
  2. Engineer the impression you want whenever you speak
  3. Deliver an engaging self-introduction or elevator speech
}

12:00 - 2:00 pm

 

Congenital Heart Disease Focus Group with Mended Little Hearts & Prolacta Bioscience

In-depth perspectives on the parent/patient journey of babies born with Congenital Heart Disorders. What are the unmet needs?
}

2:00 - 4:00 pm

 

Exhibit Set-Up

INOVA

 
}

6:00 - 7:30 pm

 

Networking Welcome Reception

Scott Elster & Keira Sorrells

Day 2 – Saturday, Sept. 29

All Activities at Inova Children’s Hospital, Physician Conference Center
}

8:00 - 9:00 AM

 

New Member Breakfast

Rooms A & C

 
}

8:30 - 9:00 AM

 

Exhibit Set-Up/Registration

}

9:00 - 9:30 AM

 

Summit Welcome

Keira Sorrells

Auditorium

 
}

9:30 - 10:15 AM

 

Engaging with Industry Partners

Carolyn TenEyck, Angela McCoy, & JoAnne Nabozny

It is a common concern that businesses will choose to collaborate with family support organizations like ours for the sole purpose of selling more products and increasing their bottom line. They are businesses, after all. At the same time, we are organizations often challenged with securing funding to pursue our missions. With this panel discussion, we will come together to achieve transparency about these relationships built on give-and-take. We’ll discuss what we expect from industry partners and learn what they expect from us. We’ll talk about ways we can we actively support each other, and we’ll share practical advice on how to successfully seek and build industry partnerships.

 – Carolyn TenEyck (Prolacta), Angela McCoy (Shire), JoAnne Nabozny (The Wellness Network)

Auditorium

 
}

10:15 - 11:15 AM

 

The Power of Persuasion

Deborah Shames

We can create our own destinies. Better communication and public speaking gives us the ability to seize every opportunity and aspire to new heights. So, whether pitching for new business, delivering a talk at a conference, raising money for our favorite non-profit, or communicating one-on-one, we can become a powerful force when we learn to speak with authenticity and confidence. Deborah will focus on how to become best-in-class through the telling of compelling stories, exhibiting command presence, and the use of intention. Since speaker anxiety affects 90% of the population, Deborah will address how to wrestle this demon and be seen as a leader. Takeaways include:

  • The value of identifying an Intention and choosing the right Role
  • Debunking the myth that if you’re not an expert, you don’t deserve to speak on a topic
  • How to turn off the critical voices in our heads
  • Techniques for coming from behind and being out front
  • Why being polished and perfect can hurt us
  • The damaging effects of self-critical judgment
  • Practical tools to shorten your prep time and become a person of influence
  • Leveraging your emotional intelligence

Auditorium

 
}

11:15 - 11:35 AM

 

Break

Wellness Room/Exhibits

}

11:35 - 12:35 PM

 
NAWBO was the first women business owner organization in the US, founded in 1975. NAWBO’s founders wanted not only to help WBOs to grow their businesses but also to change the business environment and public policy affecting WBOs through advocacy.

Auditorium

 
}

12:35 - 1:35 PM

 

Collaborations Update Lunch

Rooms A & C

 
}

1:35 - 3:00 PM

 

Evolution of Our Work

Jennifer Degl, Nick Hall, Kelli Kelley, Brittany Lothe, and Christine Yang

We wonder if our organizations are growing fast enough. Are we on the right track? Is it time for a change? This panel brings together several PPA members to share those first goals for their organizations, how their organizations came to be, and how they have changed over the past five years, ten years, or more. We can learn from each other’s successes and failures, share the challenges and solutions, and talk about what we wish we had known way back then. We want audience members to think outside the box. Stay focused and true to your mission, but be open to evolution and the myriad of possibilities that exist to further your mission.

Panelists will include Jennifer Degl – Speaking for Moms & Babies, Nick Hall – Graham’s Foundation, Kelli Kelley – Hand to Hold, Brittany Lothe – Will’s Way Foundation, and Christine Yang – The Tiny Miracles Foundation

Rooms A & C

 
}

3:00 - 3:20 PM

 

Break

Wellness Room/Exhibits

}

3:20 - 4:40 PM

 

Preemie Parent Collaborations to Educate, Advocate, and Spark Local Action!

Jenné Johns, Deborah Discenza, & Jennifer Degl

The purpose of this presentation is to share innovative ways that preemie parents can collaborate and foster inter and intra organizational partnership strategies that drive results. In this moderated panel discussion, three Preemie Parent Alliance members, and a former NICU graduate will share the results of their experience educating clinicians and public health professionals about the needs of preemie babies and adults post NICU discharge. Preemie parent and adult preemie survey research findings will also be discussed.

Rooms A & C

 
}

7:00 PM

 

Optional Group Dinner

Day 3 – Sunday, Sept. 30

All Activities at Inova Children’s Hospital, Physician Conference Center
}

8:30 - 9:30 AM

 

PPA Members Only Meeting

Rooms A & C

 
}

9:30 - 10:45 AM

 
For some parents of preemies, the desire to help others experiencing the same situation can be impossible to ignore. For you, it launched your journey as a NICU Parent Leader. As a leader, you are tasked with speaking for and representing the best interests and needs of this unique parent population. While we all have the very best intentions at heart, we have to ask if our personal experiences are representative enough to speak for an entire community. What ethical responsibilities do we have as leaders and advocates? How do we make meaningful contributions to research teams and advisory councils? This enlightening panel discussion will delve into a brief history of bioethics and how you, as a patient advocate, can make a positive impact in this discipline.

Auditorium

 
}

10:45 - 11:05 AM

 

Break

Wellness Room/Exhibits

 
}

11:05 - 12:05 PM

 

Breakout Sessions

TRACK A – Bold Leadership , Kelli Kelley

Rooms A & C

 
}

12:05 - 1:30 PM

 

Roundtable Discussion Lunch

Rooms A & C

 
}

1:30 - 2:45 PM

 

A Focus on Maternal Mental Health

Tracy Pella & Stacey Porter

Up to 75 percent of families who experience a NICU stay with their child or children are affected by maternal mental health issues. As organizations working with families during this vulnerable time in their lives, we have a unique opportunity to recognize when a new mother may be struggling emotionally. During this interactive discussion, the facilitators and the audience will explore best practices, hospital or organizational policies, and liabilities. We will talk about how to ensure we are setting appropriate boundaries while providing the best support to the mothers and families we serve.

Rooms A & C

 
}

2:45 - 3:00 PM

 

Closing Remarks

Keira Sorrells

Auditorium

 
}

3:00 - 5:00 PM

Exhibit Breakdown